Saturday, May 10, 2008

Organ Donation Chronicle - D Minus 4

Part Nine - Crisis Averted

Yesterday was the first step of the actual process leading to the surgery. As I am an out-of-state donor, they take a number of steps that would have been done earlier and place them just before the surgery so one doesn’t have to make that many extra trips. One of these steps was supposed to have been done in February when I visited last. This was visit with kidney specialist and a review of my medical history. As the doctor and my coordinator were on vacation when I was there, we couldn’t do this and it was scheduled for yesterday.

I had a heart related situation fifteen years ago. Subsequently, I have had a couple of clean stress tests though there does show a light irregularity on my EKG. Looking at my chart, the kidney specialist decided that I needed to do another stress test. It’s 10 in the morning and they want me to the cardiologist (in a different town than the hospital) at 11:45. In the meantime, they are trying to get everything I was supposed to do Friday morning done in the hour or so I had left. This included meeting the surgeon that is most likely doing the work on me.

It’s a good thing I have researched this hospital completely and know they have an excellent track record and reputation because the experience I’ve had with the majority of the people (my coordinator, the kidney specialist, my sister’s coordinator, the social worker) has been unimpressive. It’s like they’re this big factory and they’re just processing us. Every time I ask a question, I get a “I don’t know” or a pat answer that clearly is from the book. Requests to have certain people who are the specialist for the question not known, are never followed up. Fortunately the surgeon seems cut from a very different cloth and I felt very comfortable with him and let’s face it, he’s the most important one.

At the cardiologist’s, I’m expedited on to the treadmill and do a stress test. The RN handling this is big expressive very outgoing guy. As we do the test and just afterward, he’s getting quieter and quieter with a troubled look on his face. I know something bad is happening. He tells me about the irregularity which I know from the last time I did this. He shows it to the cardiologist who says that they’re going to have to do some additional testing before they can clear me; either a nuclear stress test where they actually take a picture of your heart and arteries or an angiogram that does that does this in even more depth. These could take days to do. At best I’m looking at the prospect of delaying the surgery or at worst my being disqualified as a donor altogether. Emotionally, I’m taking a broadside from a battleship.

At this point probably the nicest thing that could happen took place. The cardiologist (I’m embarrassed that I can’t remember his name) clearly sees my distress as I relate the issues of distance and my personal circumstances. He puts everything into overdrive. There is an extra dose of the nuclear dye. He OK’s my explanation that I’m in good shape and can easily do another stress test. He’s tells everyone they’re going to do it now. The staff could not have been nicer or more supportive.

The nuclear stress test involves them having you do the treadmill, then shooting you with a nuclear dye, and then lying you down motionless for 20 minutes each on your front and back while they take pictures using some sort of MRI type device. All during the wait, the test, the pictures, I am meditating and visualizing with as much concentration as I can. Finally as I am waiting following the test, the doctor comes out and tells me I’m clean and I can go ahead with the donation. As a final kindness he tells me he will call the kidney specialist to make sure that they have gotten the news and that everything is still on schedule.

It is almost 4 in the afternoon by the time all this has happened. I haven’t eaten since breakfast, it’s pouring cats and dogs out, and I’m totally wiped out. I get to my father’s and he gives me a restorative snack of cheese and armagnac. We decide to cook at the house. I run out and get a big steak and baked potato that Dad cooks along with onions cooked in schmaltz. I go down into his cellar and dug up a bottle of a ’91 Côtes du Rhone. It’s a real soul food kind of meal and with my Father’s company, very restorative. I crash at around 9 PM and sleep through the night.

Friday, May 9, 2008

Organ Donation Chronicle - D Minus 5

Part Eight - It’s Becoming Reality

The chaos leading up to the trip was ultimately very beneficial. I was in fact tying up lots of loose ends with my business and getting things into position to go on autopilot for the period that I was to be down. The vacation itself was great. I really wasn’t thinking about anything other than what we were doing which was a blessing. On the flight back, my mind turned back to what was about to occur.

My associates and I made a decision to make a public announcement via our E-Letter of my unavailability during the surgery and recovery period. Our list is around 1000 and I must have had close to a hundred emails expressing support not to mention all the expressions of support from friends, clients and associates. It has been very humbling and touching.

My associates were doing a phenomenal job. We have new business opportunities being lined up for following the surgery. All the client work is in good shape. We had a financial hiccup with a lot of slow paying receivables that put Wife and I into a little panic. But with the help of our associates we put that to rest.

Wife and I did a lot of talking – a lot of making sure we were on the same page and were OK with the decision.

More miracles within the family – my father prodded me about making sure my sister had the proper support over the first few weeks after the surgery when there is the necessity of a highly disciplined regime of anti-rejection drugs she needs to be taking. This leads to me calling my older brother and asking for help that is gladly given...I don’t thing we’ve talked in over a year. We have a conference call with my two brothers, my father and I. We haven’t had this kind of discussion I think ever. My Dad is incredibly relieved that my older brother is going to following my younger brother coming to CT to provide support – and they haven’t had a very good relationship either. My younger brother is providing more and more emotional support to me. My sister is showing that she is truly committed to doing what she will have to do after the surgery.

Finally there isn’t a whole lot left to do other than pack and make my way to Connecticut. No more thinking or planning. Everything associated with everyday life has been programmed into the autopilot and set on its way to a point in the future when I will rejoin it. It is a very, very odd feeling. I’m mix of emotions and feelings from blissfully spiritually to fear of the unknown - a potential end to it all. And I’m on the plane to Connecticut. It is happening.

Thursday, May 8, 2008

Organ Donation Chronicle - D Minus 6

Part Seven - Coming Down the Final Stretch

As we moved into March life was getting unbelievably hectic. Fine, I’d made my decision. I was totally comfortable with it. But that didn’t take away from my need plan my life so that this wasn’t going to be a bad financial disruption. I had bought a copy of the DVD, The Secret, for my associate, Ricardo, and we were watching it at his home. It’s all about the power of visualization. I had got it for him but I took the message to heart. I needed to visualize exactly how I was going to power through this to the outcome I wanted. So I started putting lots of energy into that. At the same time I was trying to work as hard as I could to 1) make sure my existing clients were all where they needed to be when I took my hiatus and 2) that I had some business to look forward to when I was able to come back to work.

Other things were happening; signs that I truly had made the right decision. After my visit to CT in February, my Dad had come to the conclusion that his new guide dog really needed walking every day, something he could not do. So he asked my sister to do it. My sister and my Dad have had almost no relationship for decades. Now they were seeing each other everyday – and talking – and communicating. I never thought I would see this happen. Some things with my associates that were real question marks suddenly just resolved themselves. All of a sudden after years of effort, we were seen new business being developed by people other than me and in places other than New Mexico. And on top of it, totally unasked for, a financial benefactor offered to provide me with financial support for the period when I couldn’t work and had the extra expenses for being in CT. A huge psychological burden lifted.

We had our trip to Europe coming up and I wasn’t excited. I should be working. Even with the benefactor, I should be doing everything in my power to make sure the business would be in good shape. Up until the night before we left, I was working and when we got on the plane I had done virtually nothing to be ready for our trip.

Wednesday, May 7, 2008

Organ Donation Chronicle - D Minus 7

I leave for Hartford tomorrow morning. I've done everything I can do here. The final stage is underway.

Part Six - Starting the Countdown

We had set the date, May 14. It was real. We were going to do this. Now the reality of trying to organize my business so that I could maximize my cash in the bank and some how have some momentum for when I came out. I told my associates that from now (January 2008) until the donation was complete that I was going to focus exclusively on earning income and was putting longer term developmental projects on hold. We were in the process of some significant developments with associates having their own challenges and there were lots of questions as to where everything was going to end up. Not exactly a comforting set of thoughts as I’m wondering how we’re going make this all work financially.

Because so much time had elapsed since we had started this process, it was necessary to redo most of the medical tests. Back I went for the dozen test tubes of blood and the 24-hour urine sample. Of course by now I was pro and was non-plussed. Certain tests for tissue sampling and various dread diseases, the hospital in Connecticut wanted to do directly. So in February, I took a trip their.

There was the incident where we found out the hospital had been put on probation and both my sister and I were wondering what we would do. I have a client who consults with hospitals and was able to determine that it was not as dire as it appeared in the press.

Around this time a funny thing happened. It had to do with my motivations. They didn’t get challenged. They expanded. I can’t quite remember how it took place but I was becoming very aware of gratitude and specifically my personal gratitude for so much that had happened to me in my life.

It might not seem this way to some, but I feel I’ve had a charmed life. Any time something bad happened; something else happened to bail me out. When I was in the Army, I was supposed to go to Viet Nam – I had orders to go – but there was a one-letter error on the orders. The clerk could have easily said that it made no difference. Instead she said the orders were faulty and sent them back to Washington where we promptly never heard from them again. I was not the best person when I started my marriage or raising my kids. But my Wife had unlimited patience and waited until I got my act together. I had business failures and made bad spending decisions that were ultimately bailed out by relatives. Just in the last few years I have missed major auto accidents by the tinniest of margins. Never had I been put in a situation where I had to make a conscious decision about putting myself at risk for something that was truly important – like another’s life.

But here it was – that situation where I had in fact been offered the opportunity to make a conscious decision – to decide if I was willing to take the risk to save someone else. It was so clear in my mind at that moment that God was giving me a test. Was I going to take all the good fortune for granted as if I was entitled to it? Or was I going accept that I needed to repay all the good fortune I had received. Was I going to be true to the spiritual principles I had worked on for 25 years? Or when there was a risk to my life, was I going to bail?

For me there was no question. And it filled me with even more confidence that this was what I was supposed to and what I needed to do

Monday, May 5, 2008

Organ Donation Chronicle - D Minus 9

Agh I'm going crazy. Let's get this thing over now! Where can I find a copy of "Kidney Transplants for Dummies." I'll just do it myself and Fedex my kidney to them.

Pant, pant, pant, pant

That's OK. I'm better now. Continuing the saga - Part Five

The Decision is Made

We watched the dance of my sister trying to deal with system going to her own psychologist and then the Hospitals and back. In the meantime the weeks and months ticked away – September, October, November. We were supposed to be spending Christmas with our daughter in Chicago but we couldn’t make any commitments or reservations because we might get the call that we can do the transplant in December. I’m balancing commitments to my associates at work. What can they expect of me? Wife, who has been so supportive, asks only one thing, that this doesn’t screw up a long planned river cruise in Europe. I keep trying to tell my sister what my restraints are that if it can’t be done December, we are going to have to wait until May.

Finally in December the call finally comes. Sister is approved. Let’s do this in late January. Explosion number two. The hospital is telling me that they only schedule these donations six weeks in advance. I talk to my coordinator and explain the situation (now that I can actually talk to someone officially), how I need time to put my affairs business and financial in order and how May is the time that I want to do the donation. The hospital agrees to my request. In the game of Hospital Bureaucracy vs de-I, it’s 5832 to 1. I’m on the scoreboard!

Of course my sister wasn’t too happy about the delay but with my assurances that I was fully committed to making the donation, she was OK about it. Just a side note for the purpose of full disclosure – my sister never once asked me to donate my kidney and I can say in all honesty that I don’t think she ever even once made the slightest implication of guilt. All she has ever shown was gratitude.

Sunday, May 4, 2008

Weekend Cooking

The memory aspect of Modzilla Firefox reminds me of how uncreative most of my post titles are. Perhaps that is because my life is fairly unexciting as well. I only did a short hike today because I needed to leave time to cook for some friends coming over for dinner.

I made a four course meal of:

  • Panzanella
  • Spanish Style Chicken Fricassee and Rice Pilaf
  • Cheese
  • Raspberry Shortcake
I was inspired by Motherrocker's recent post to use the Panzanella for my first course. To change it from a meal to a first course, I eliminated the beans and substituted a light chiffonade of dried sausage just to give it a bit of salty zest without too much weight. My veggies were fennel, red and orange bell pepper (parboiled a la MR) along with cucumber and marinated artichoke hearts. Properly admonished by the estimable MR, I was not about to skimp on the croûtons. I flavored the with garlic and fresh oregano from Wife's garden.

Croutons in Raw State

My Garlic, Oregano, Olive Oil Mixture


Finished Croutons
I decided to leave each element separate in the bowl which I had out on the counter when our guests arrived. Then I added the croutons, fresh oregano and parsley, the vinaigrette and mixed it tableside. It was a big hit.


Our main course was a chicken fricassee with Spanish style flavorings. I used my classic chicken fricassee recipe and augmented it with carrots, celery, parsley and thyme. Then added pimenton (Spanish smoked paprika) and saffron. I cooked this all the day before. Then on the day, I separated the meat from the sauce. The finished chicken is below.

I made a sauce with some sauteed elephant ear mushrooms (don't ask, it's the first time I saw them or used them and the cooking juices.

My shortcake I made myself


I made the sauce from some raspberries we had frozen from last years crop. Turned out fantastic.


CinderCella

Somehow granddaughter C is under the impression that grandchildren are to be spoiled. I've informed her that it's more like Cinderella where she has to work for the wicked grandparents. While I was cooking she was working in our garden with Wife for around 4 hours. Actually she loves it and was making up songs singing to herself about working in Grandma's garden.

C doing Hard Time Mixing Soil Additives

Friday, May 2, 2008

Organ Donation Chronicle - D Minus 12

I had a nice few days in Chicago working with our clients and doing planning with Lakeview and Ricardo. Had a couple of nice dinners; one with Lakeview and Ricardo described on Lakeview's site, the other with daughter Motherrocker and husband John the Armenian at a place called Sola. Hopefully MR will write more details but we were very impressed with the quality and the price, especially the reasonable wine prices.

Now to continue my story about the decision to donate my kidney

Part Four

The Wait And The Call To Action

The wait began in the early fall of 2006. Through first part of 2007 the thought of doing the donation went into the background. There was nothing my sister or I could do. Her condition needed to run its course. To a certain degree it was if it never happened. I couldn’t plan for it so I went forward with my life. Every once and a while someone would ask or Wife and I would bring it up but for the most part it became a non-issue.

Then in the summer of 2007, my sister gave me the news that her kidneys were again failing. My sister is not the subtlest person in the world. Her words were that we could schedule the donation surgery again. I nearly blew up telling here I couldn’t just up and do this that I had to plan things out to ensure the minimal disruption to my business and our financial well-being. Wife in the interim had suggested that maybe there was a chance of a non-living donor being available. I know this upset my sister a lot. She was very apologetic about how she had delivered the news and asked if I had changed my mind. I did take a few days to reflect and no, I had not chanced my mind. This was something I still felt was important for me to do.

I needn’t have bothered with my explosion. Because of the time that had elapsed they (the hospital) were starting the process of approving her for a transplant all over again. During the hiatus, there had been a complete turnover of the personnel who were the coordinators for the recipient and the donor. So both of us were dealing with new people that we had no prior contact with. In addition these people seemed very inexperienced and to my mind very bureaucratic.

My sister went through another round of screening and there was serious concern on the part of the hospital after her psychological examination. They asked her to get an outside opinion. I’m not sure what the issue was but I can extrapolate that they were concerned about her ability to follow through on all the requirements following the receipt of the organ donation.

While all this was going on, we are waiting and wondering because the hospital refused to talk to us. There position was until my sister was officially approved, there was no authorization to talk to a donor. I was livid. What about my life? Didn’t my needs enter into the equation? I needed to talk to them. I needed to tell them that I couldn’t just drop what I was doing and run and donate my kidney. My business was at a critical point and I had to plan for my absence. We wanted to do the donation in December when business was always slow. I tried to explain all this to my sister so she would understand but in reality she was caught up in the system too.